End of Life Conversations: Have You Had Yours?

A large majority of the doctors (roughly 75 percent) believe it’s their responsibility to initiate the end-of-life conversations, however, less than one-third have received training on how to do so effectively with their patients and patients’ family members.  This is important for several reasons. At the end of life we  waste a great deal of resources by not educating and talking about  the end of life.  Annually we waste $210 billion on unwanted, unnecessary and non-beneficial healthcare services.

80 percent of people believe it’s important to create advance directives, but less than 25% have actually done so, and only 7% with their doctor’s help. Seventy-five percent of the doctors say the conversations, which are often held in a hospital or other healthcare facility, are initiated because Medicare reimburses for advanced-care planning. However, only approximately 14 percent of the doctors report having to bill Medicare-eligible patients for having the conversations. Despite the fact that end-of-life talks are covered by insurance for elderly patients, which removes financial hurdles, doctors still find it difficult to overcome the discomfort of talking about death. More than that, most electronic paperwork systems are so antiquated, doctors report there’s no place to include their patients’ end-of-life preferences in their file.

End-of-life conversations not only help ensure a patient the specific type of treatment they want once they may no longer be able to articulate their desires, but they also save costs associated with treating someone medically who doesn’t want to prolong life. Without “the talk,” doctors and possibly even family members would be left in the dark on how their loved one wishes to proceed when they are critically ill and dying.

Adapted from Medical Daily 2016

Wow!  this has been pretty busy so far this year!  I have been helping out Compassion and Choices to do some talks about the importance of a specific Living Will WITH a choice of a good Surrogate who can speak for you if you are unable to.  I gave a presentation at the Herald Tribune in Sarasota FL a couple weeks ago.  For my talk I emphasized this and explained that after one becomes incapacitated, it is too late.  I also told the group that lying in an ICU bed is NOT desirable.  Do you know why?

First,  the longer you are in the hospital, especially the ICU, the bigger chance you will develop an infection.  Maybe someone does not wash their hands.  Maybe you are just so sick you cannot fight off the bugs brought to your bedside.  Second, we now know that even after the short time of 48 hours, people are likely to develop Post-Intensive Care Syndrome (PICS).  What is PICS?  It is where you get out of the hospital, and now have post-traumatic stress disorder (PTSD)...yes!  Just like our Servicemen and women get!  And also, you are likely to develop Alzheimers-like symptoms where you are unable to remember and think clearly.  Many people who have been seriously ill in the ICU never go back to work because of these things.  Third:  Do you have any idea what kind of costs you will be racking up lying in that bed?  Just consider:  an ICU bed (just the bed, no meds, no treatments, X-rays or ANYTHING else!!!) costs about $7000.00 per day.  Multiply by a week or 2!  Yes, you might be lucky to have insurance that covers 80% of those costs, but YOU will need to cover the rest.  How many people have $50,000. or more of disposable income to pay the remainder?  Not many.

So, advice, needless to say is to talk with your family.  Think about: What is valuable to me?  Would I be happy to never golf again? What about never playing bridge?  What about never being able to hold my grandkids?  What about never eating normally again?  These are your values.  You should think about theses things so YOU can make your own choices and consider your values.  Today is a good day to start!

Confusion Between Palliative Care and Hospice Care

Last week I was caring for an 84 year-old gentleman who had been battling colon cancer at home.  His condition worsened and he ended up in our ICU after having major abdominal surgery.  He had never had palliative care, which would have been a benefit since, at his age, he was unlikely to recover to his previous level of function.  Now that he was even more deconditioned, it was appropriate to discuss palliative care for him.  I found this article, written by an Emergency Physician in California which helps clarify supportive care at the end of life. 

Clearing palliative care confusion

•    Story


Posted: Friday, February 5, 2016 6:40 pm

By Terry Hollenbeck MD

There seems to be some confusion when it comes to understanding the difference between palliative care and hospice. They are both distinctive medical disciplines and often work together.

Hospice care comes into play when a patient has a terminal illness and all treatment options have been exhausted. It is really for those who have been determined to be in their last six months of life. The goal of hospice care is not to cure the underlying disease but to support the quality of life. Hospice care maximizes comfort for terminally ill patients while also addressing physical, social and spiritual needs.

Hospice care is most commonly provided at a patient's home, with a family member typically serving as the primary caregiver, but, it is often available in facilities. The hospice care team is usually available 24 hours a day, seven days a week.

Palliative care is medical care based on the goal to relieve pain and suffering, reduce symptoms, ease stress, and mainly to improve a patient's quality of life during a serious illness and is not limited to end of life issues. People who are actively being treated for a disease can receive palliative care at any stage of their illness whereas hospice is thought of as end of life care.

This is an important distinction because many people think of palliative care as end of life care. The palliative care team works closely with the patient's primary treating physician in caring for the patient. While the patient's treating physicians may be trying to prolong life, palliative care's goal is to maximize quality of life.

Identifying and managing pain is one of the main priorities of any palliative care program. Palliative care also seeks to improve many other troublesome sources of physical discomfort such as shortness of breath, constipation, and insomnia.

Happy New Year!

Happy New Year!

Here we are already in 2016!  Time flies, and we are yes, admit it! One year older!  So I reflect on some very positive things from 2015:

As I mentioned before, I was invited to present a talk at the World Nursing Conference in Dubai.  It was very interesting, for one, to be half way around the world!  And also in a completely different culture!  As nurses, we all have many of the same concerns for better healthcare and improved lives of those we care for.  And as such I am thinking that it is never too soon to think about whether we have had those discussions with our family members about our wishes should a catastrophic event or illness occur. 

I recently did a talk at our local library in Michigan about considering your wishes if something occurs, and what to consider and why.  Keep in mind that we always think ‘It won’t happen to me,’ or ‘I’m too young to consider what I’d want if I cannot continue the life I have now.’  But it is NEVER too soon to think and talk about these topics, as hard as it may be.

You do not want to have these things happen and you have not discussed your thoughts and wishes with anyone.  Trust me, it is something I see very often at my hospital.  And it is too late of you cannot communicate.  So please, think about this, read some of the questions I have here on the website and  ask a healthcare professional or your doctor to help you understand.